The Building the Right Support team is seeking to improve care and support for children, young people and adults who have learning difficulties and/or autism across Derby and Derbyshire.

Estimates of people with a learning disability for Derby and Derbyshire are slightly more than 2% of the population, which is approximately four times the proportion of the population who are known to services. It is estimated that there are 15,250 people in Derbyshire and 4,950 people in Derby with a learning disability (people with mild to severe learning disability).

It is estimated that 1% of the population have autism. Research has identified between 44% and 52% of people with autism may have a learning disability and between 48% and 56% do not have a learning disability. Data from GPs in Derby and Derbyshire show there are 3,358 people with autism (who have no learning disability).

The team has a broad remit which has included working as part of the local Transforming Care Partnership, now in its final year as a formal programme but with a remit that is set to continue beyond March 2019.

Building the Right Support

Derbyshire has been home to one of the 48 Transforming Care Partnerships that were set up across the country. This partnership brought together clinical commissioning groups and local authorities to work with people with a learning disability, autism or both and their families and carers to agree and deliver local plans for the programme.

Following on from this, Building the Right Support for people with learning disabilities and/or autism is about improving health and care services so that more people can live in the community, with the right support, and close to home.

Further information from NHS England plan, Building the Right Support, published in October 2015.

Annual health checks

People with a learning disability often have poorer physical and mental health than other people. This does not need to be the case.

Annual health checks are for adults and young people aged 14 or over with a learning disability.

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Find out more:

Learning Disability Mortality Review (LeDeR)

The Learning Disabilities Mortality Review (LeDeR) programme was established in May 2015 to support local areas across England to review the deaths of people with a learning disability, to learn from those deaths and to put that learning into practice.

CCGs are expected to work with their local partners including people with a learning disability, families and carers, local authorities and NHS trusts. CCGs have a responsibility to improve the quality of the health and social care services provided to people with a learning disability, and to address the persistent health inequalities people often face.

View this video to learn more about LeDeR works.

STOMP/STAMP programme

STOMP stands for stopping over medication of people with a learning disability, autism or both with psychotropic medicines. It is a national project involving many different organisations which are helping to stop the over use of these medicines.  STOMP is about helping people to stay well and have a good quality of life. STAMP stands for supporting treatment and appropriate medication in paediatrics.

Visit the NHS England website for more information.

Derbyshire Healthcare NHS Foundation Trust has created a set of five short films about STOMP, one each for GPs, psychiatrists, carers, learning disability teams and pharmacists.

Latest information and resources - Covid-19

A number of resources, advice and guidance has been published on the Coronavirus (Covid-19) outbreak in relation to people with learning disabilities and/or autism. These include:

Public Health England easy read guide to Covid-19 vaccinations

Gov.uk information on shielding and protecting people defined on medical grounds as extremely vulnerable

Gov.uk guidance on social distancing and for vulnerable people

Gov.uk easy read guide on Coronavirus

The hand-washing rap video by the Purple All Stars

Hand washing rap video picture

Autism and information service in Derbyshire YouTube channel - providing updates during Coronavirus

App for information about child health

Learning Disability Matters has launched a new app to provide parents, carers and families with information about supporting people with learning disabilities. It provides advice, guidance and links to support services. For more information, click here.