FOI 1656 – Paediatric Neurology
FOI Reference Number:
1656
Request
1) Any treatment or policies for management of children aged 18 and under for the following conditions? a) PANDAS b) PANS c) immune mediated neuro behaviour conditions
2) Whether there are any commissioning arrangements for children aged 18 and under for a) PANDAS b) PANS c) immune mediated neuro behaviour conditions including the details of which departments are commissioned to treat/manage these patients.
3) The number & costs of Independent Funding Requests (IFR’s) the CCG has issued for complex childrens conditions for each for the past 5 years and whether any of these relates to a) PANDAS b) PANS c) immune mediated neuro behaviour conditions.
4) Please could you provide me with any minutes of meetings which decided how patients are treated following the British Paediatric Neurology Association Consensus Statement dated April 2021 and details of any changes in how the trust treated or diagnosed patients following this statement along with details of who made the decision to implement any changes.
Response
Date: 16 September 2022
FREEDOM OF INFORMATION – DECISION NOTICE
Dear Sir / Madam,
FOI Reference Number: 1656
1) Any treatment or policies for management of children aged 18 and under for the following conditions? a) PANDAS b) PANS c) immune mediated neuro behaviour conditions
Derby and Derbyshire ICB do not hold policies locally. Paediatric Neurology is a specialism that is delivered in tertiary hospitals and is not available in the local acute hospitals in Derbyshire.
2) Whether there are any commissioning arrangements for children aged 18 and under for a) PANDAS b) PANS c) immune mediated neuro behaviour conditions including the details of which departments are commissioned to treat/manage these patients.
Derby and Derbyshire ICB are not the lead commissioner for tertiary hospitals and as such have no direct commissioning arrangements in relation to PANS, PANDAS or immune mediated neuro behaviour conditions.
3) The number & costs of Independent Funding Requests (IFRs) the CCG has issued for complex children’s conditions for each for the past 5 years and whether any of these relates to a) PANDAS b) PANS c) immune mediated neuro behaviour conditions.
We do not hold information in a way that would allow us to identify specifically IFRs relating to “Complex children’s conditions”. We can however state that IFR’s for children and young people (CYP) are very rare and that we have encountered none that have referenced the conditions referred to in your request, or that related to treatment for conditions of this type.
4) Please could you provide me with any minutes of meetings which decided how patients are treated following the British Paediatric Neurology Association Consensus Statement dated April 2021 and details of any changes in how the trust treated or diagnosed patients following this statement along with details of who made the decision to implement any changes.
No such meetings have been held locally.
I hope that this answers your queries with the information we currently hold, but if I can be of any further assistance please do not hesitate to contact me.
If you are dissatisfied with the handling of your request, you have the right to ask for an internal review. Internal review requests should be submitted within two months of the date of receipt of the response to your original letter and should be addressed to:
NHS Derby and Derbyshire ICB
FOI Team
Scarsdale
Nightingale Close
Newbold
Chesterfield
S41 7PF
Or:
If you are not content with the outcome of our review, you may apply directly to the Information Commissioner for a decision. Generally, the ICO cannot make a decision unless you have exhausted the complaints procedure provided by the Derby and Derbyshire Integrated Care Board (ICB).
The Information Commissioner can be contacted at: Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire SK9 5AF, telephone 0303 123 1113, email casework@ico.org.uk.
Yours faithfully,
Kathryn Jacklin
FOI Officer
Derby and Derbyshire ICB
All information we have provided is subject to the provisions of the Re-use of Public Sector Information Regulations 2015. Accordingly, if the information has been made available for re-use under the Open Government Licence (OGL) a request to re-use is not required, but the licence conditions must be met. You must not re-use any previously unreleased information without having the consent from the ICB. Should you wish to re-use previously unreleased information then you must make your request in writing (email will suffice) to the FOI Lead via ddicb.foi@nhs.net. All requests for re-use will be responded to within 20 working days of receipt.
