FOI 1682 – Multiple Sclerosis
FOI Reference Number:
1682
Request
1. How many people in your area have been diagnosed with MS?
2. If possible, please provide a breakdown of those with Remitting MS and those with Progressive MS (including Secondary Progressive).
3. If possible, please provide a breakdown of 2) above showing those that are Male or Female and age (within bands of 10 years from 0 upwards).
4. What is the total annual funding provided in respect of MS. Please provide a breakdown of the funding that relates to “core service provision” and the amount that relates to individual treatment (such as cost of medication, etc).
5. If funding is being used for the provision of medication, please say what the average annual spend is for those patients who have Remitting MS and those that have Progressive MS (if data is available).
6. In relation to those patients who have Secondary Progressive MS, do you help fund the cost of the patient receiving Siponimod (Mayzent). If yes, please provide the total number of cases where funding is being provided and average annual spend. If you do not provide funding for such cases, would you consider to do so if the patient contributed towards the funding?
7. If known, do you contribute towards the domiciliary care costs of patients who have Progressive MS (including Secondary Progressive). If so, please say the average annual spend.
Response
Date: 28 October 2022
FREEDOM OF INFORMATION – DECISION NOTICE
Dear Sir / Madam,
FOI Reference Number: 1682
1. How many people in your area have been diagnosed with MS?
2. If possible, please provide a breakdown of those with Remitting MS and those with Progressive MS (including Secondary Progressive).
3. If possible, please provide a breakdown of 2) above showing those that are Male or Female and age (within bands of 10 years from 0 upwards).
4. What is the total annual funding provided in respect of MS. Please provide a breakdown of the funding that relates to “core service provision” and the amount that relates to individual treatment (such as cost of medication, etc).
5. If funding is being used for the provision of medication, please say what the average annual spend is for those patients who have Remitting MS and those that have Progressive MS (if data is available).
6. In relation to those patients who have Secondary Progressive MS, do you help fund the cost of the patient receiving Siponimod (Mayzent). If yes, please provide the total number of cases where funding is being provided and average annual spend. If you do not provide funding for such cases, would you consider to do so if the patient contributed towards the funding?
7. If known, do you contribute towards the domiciliary care costs of patients who have Progressive MS (including Secondary Progressive). If so, please say the average annual spend.
Our response:
I can confirm that we do not hold information to the level of detail required to respond to all of your questions.
According to the information that we hold, the number of diagnoses of MS in Derbyshire that we are able to readily identify is currently 93, however this only represents diagnoses in secondary care. We are not able to identify diagnoses in primary care.
Please see the attached spreadsheet for all of the further information specifically relating to MS related procedures that we are able to provide. The spreadsheet shows Derbyshire activity and spend on MS procedures across several hospital Trusts in 2021/22.
I hope that this answers your queries with the information we currently hold, but if I can be of any further assistance please do not hesitate to contact me.
If you are dissatisfied with the handling of your request, you have the right to ask for an internal review. Internal review requests should be submitted within two months of the date of receipt of the response to your original letter and should be addressed to:
NHS Derby and Derbyshire ICB
FOI Team
Scarsdale
Nightingale Close
Newbold
Chesterfield
S41 7PF
Or:
If you are not content with the outcome of our review, you may apply directly to the Information Commissioner for a decision. Generally, the ICO cannot make a decision unless you have exhausted the complaints procedure provided by the Derby and Derbyshire Integrated Care Board (ICB).
The Information Commissioner can be contacted at: Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire SK9 5AF, telephone 0303 123 1113, email casework@ico.org.uk.
Yours faithfully,
Kathryn Jacklin
FOI Officer
Derby and Derbyshire ICB
All information we have provided is subject to the provisions of the Re-use of Public Sector Information Regulations 2015. Accordingly, if the information has been made available for re-use under the Open Government Licence (OGL) a request to re-use is not required, but the licence conditions must be met. You must not re-use any previously unreleased information without having the consent from the ICB. Should you wish to re-use previously unreleased information then you must make your request in writing (email will suffice) to the FOI Lead via ddicb.foi@nhs.net. All requests for re-use will be responded to within 20 working days of receipt.
