FOI 1734 – Autism Spectrum Disorder Services
FOI Reference Number:
1734
Request
1. Please name the organisation(s) that deliver(s) CYP (children and young people) ASD assessment / diagnoses in your ICB area
a. When did the contract(s) begin and when is the contract(s) due to end
b. What is the annual spend for this service for 2022, and for the last 5 years?
c. How is the service contracted – is it Block, Activity-based, or AQP contracting?
d. If the service is commissioned with other CCGs, ICSs or Trusts, which are these?
e. At what prevalence (% of the child population) have the contracts been commissioned against?
2. Does the same organisation as for Question 1 also deliver CYP ASD prescriptions and post-diagnosis ASD support in your ICB area? If not, please provide the same information for this organisation.
3. Please outline the CYP ASD pathway in your area, including key referral sources
4. How many children and young people are currently waiting for a CYP ASD assessment in your area? What is the longest and median wait time from a referral?
a. Within the last year, how many children and young people were assessed within 12 weeks of referral?
b. Within the last year, how many children and young people were discharged without assessment?
c. Please answer Questions 4, 4a, 4b for as many historic years as possible, up to 5 years
5. For the last 5 years, please give the number of CYP patients per year in the ICB who were:
a. Referred for ASD assessment
b. Given an ASD assessment
c. Given an ASD assessment from a ‘Right to Choose’ provider, outside the service contracted
d. Diagnosed with ASD
6. For the last 5 years, what was the average number of ASD-qualified staff delivering services in the area? How does this split by role:
a. Qualified psychiatrists
b. Paediatricians
c. Speech and Language therapists
d. Clinical Psychologists
e. For a-d, please also give numbers of trainees
7. Please provide equivalent answers for Questions 1-6, but for Adult ASD services in the ICB. If the ICB does not distinguish between CYP and Adult ASD services, please answer Questions 1-6 for all patients collectively
Response
Date: 20 January 2023
FREEDOM OF INFORMATION – DECISION NOTICE
Dear Sir / Madam,
FOI Reference Number: 1734
Please note that for administrative purposes we have slightly rearranged the wording of your request however all of the elements of your original request are included.
1. Please name the organisation(s) that deliver(s) CYP (children and young people) and Adult ASD assessments / diagnoses in your ICB area
CYP: Chesterfield Royal Hospital NHS Foundation Trust (CRHFT)
University Hospitals Derby and Burton NHS Foundation Trust (UHDB)
Derbyshire Healthcare NHS Foundation Trust (DHCFT)
Derbyshire Community Health Services NHS Trust (DCHS)
Adult: Sheffield Adult Autism and Neurodevelopmental Service (SAANS) at Sheffield Health and Social Care NHS Foundation Trust (SHSC).
a. When did the contract(s) begin and when is the contract(s) due to end
CYP: We do not hold this level of detailed information as the services are not separately commissioned from other services.
Adult: SAANS hold an ongoing contract which is 5 years old and is renewed annually.
b. What is the annual spend for this service for 2022, and for the last 5 years?
CYP: We do not hold this level of detailed information as the services are not separately commissioned from other services.
Adult: £340,000 per year.
c. How is the service contracted – is it Block, Activity-based, or AQP contracting?
All: Block
c. If the service is commissioned with other CCGs, ICSs or Trusts, which are these?
CYP: These assessment services are not separately commissioned from other services.
Adult: SAANS is commissioned with South Yorkshire ICB.
d. At what prevalence (% of the child / adult population) have the contracts been commissioned against?
CYP: We commission 162 neurodevelopment assessments, which includes both ASD and ADHD, per month based on a population of 10,345 CYP (live births per annum – ONS data). We calculate this as 18.8%.
Adult: We commission 35 adult cases per year via SAANS.
2. Does the same organisation as for Question 1 also deliver CYP and adult ASD prescriptions and post-diagnosis ASD support in your ICB area? If not, please provide the same information for this organisation.
CYP: Yes
Adult: Yes
3. Please outline the CYP and adult ASD pathways in your area, including key referral sources
We do not hold this information. We would advise that you direct this query to our providers as above.
4. How many children and young people / adults are currently waiting for a CYP ASD assessment in your area? What is the longest and median wait time from a referral?
a. Within the last year, how many children and young people / adults were assessed within 12 weeks of referral?
b. Within the last year, how many children and young people / adults were discharged without assessment?
c. Please answer Questions 4, 4a, 4b for as many historic years as possible, up to 5 years
We do not hold this information. We would advise that you direct this query to our providers as above.
5. For the last 5 years, please give the number of CYP / adult patients per year in the ICB who were:
a. Referred for ASD assessment
b. Given an ASD assessment
c. Given an ASD assessment from a ‘Right to Choose’ provider, outside the service contracted
d. Diagnosed with ASD
We do not hold this information. We would advise that you direct this query to our providers as above. There is no prior approval for Right to Choose.
6. For the last 5 years, what was the average number of ASD-qualified staff delivering services in the area? How does this split by role:
a. Qualified psychiatrists
b. Paediatricians
c. Speech and Language therapists
d. Clinical Psychologists
e. For a-d, please also give numbers of trainees
We do not hold this information. We would advise that you direct this query to our providers as above.
I hope that this answers your queries with the information we currently hold, but if I can be of any further assistance please do not hesitate to contact me.
If you are dissatisfied with the handling of your request, you have the right to ask for an internal review. Internal review requests should be submitted within two months of the date of receipt of the response to your original letter and should be addressed to:
NHS Derby and Derbyshire ICB
FOI Team
Scarsdale
Nightingale Close
Newbold
Chesterfield
S41 7PF
Or:
If you are not content with the outcome of our review, you may apply directly to the Information Commissioner for a decision. Generally, the ICO cannot make a decision unless you have exhausted the complaints procedure provided by the Derby and Derbyshire Integrated Care Board (ICB).
The Information Commissioner can be contacted at: Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire SK9 5AF, telephone 0303 123 1113, email casework@ico.org.uk.
Yours faithfully,
Kathryn Jacklin
FOI Officer
Derby and Derbyshire ICB
All information we have provided is subject to the provisions of the Re-use of Public Sector Information Regulations 2015. Accordingly, if the information has been made available for re-use under the Open Government Licence (OGL) a request to re-use is not required, but the licence conditions must be met. You must not re-use any previously unreleased information without having the consent from the ICB. Should you wish to re-use previously unreleased information then you must make your request in writing (email will suffice) to the FOI Lead via ddicb.foi@nhs.net. All requests for re-use will be responded to within 20 working days of receipt.